Rare Disease Week is more than a moment—it is a catalyst for progress. In this post-event webinar, we reflect on the key themes, conversations, and policy signals that emerged during Rally for Rare and Rare Disease Week on Capitol Hill.
Featuring perspectives from advocates, researchers, and industry partners, this discussion will explore how patient-led advocacy is shaping research, regulatory thinking, and public policy—and what comes next for the rare disease community. Attendees will leave with a clearer understanding of how recent momentum can be translated into sustained action, collaboration, and impact throughout the year ahead.
What the Audience Will Learn:
- Key advocacy themes and policy priorities that surfaced during Rare Disease Week
- How patient and caregiver voices are influencing research, regulatory pathways, and access decisions
- Where rare disease research and policy momentum is heading in 2026 and beyond
- How advocates, researchers, and industry can continue to collaborate between awareness moments
Who This Webinar Is For:
- Clinical researchers and healthcare professionals working in rare and ultra-rare diseases
- Biotech and pharma teams focused on rare disease development
- Patients, caregivers, and rare disease advocates
- Patient advocacy organizations and community leaders
